Network Plus advocated for ARV supply stability through CLMS data

On January 20, 2023, Network Plus (N+) urged the Department of Health (DOH) to resolve the unstable supply of HIV antiretroviral (ARV) treatment as the network received numerous reports from the PLHIV community on alleged stock-out. It was raised that they even experienced receiving only “one bottle of ARV or even less”, which puts them in what they described as a “life-and-death situation” struggle.

N+ is the national network of organizations of PLHIVs and people advocating to strengthen HIV and AIDS response at the national level down to the grassroots. Elena Felix, Convenor of the network narrated that ARV stockout has resulted in a clamour from various groups in the country, as it has been a long time issue for the PLHIV community.

Matagal ng nararanasan ng community ang ARV stockout… Pero nitong last year, nagistart ang clamour somewhere in Visayas Region. Nagemail na sila sa Network Plus stating that they have issues of stockout,” she said.

It also became a shared struggle with the facilities as many service providers have been putting efforts to continuously provide quality service for their clients. Ms. Felix shared, “Nahihiya sila [facilities] at naawa sa clients dahil walang naibibigay. Nanghiram na sila sa ibang karatig na bayan para lang may maibigay sila kahit na tag-15, or for 10 pcs ng ARV… nagagawan nila ng paraan in their own regions na naghihiram na nagpapalitan pero ayun nga hindi kase natin pwede sabihin sa ating mga clients na lagi na lang tuwing magtatanong sila ay may paparating. Hindi yun ang sagot sa clamour ng mga clients. At ang laging sasabihin ng mga clients ay it is a matter of life and death, nakasalalay dito ang aming buhay.” 

 In response to the emerging clamour, N+ released a statement urging DOH and the Philippine National AIDS Council (PNAC) to mechanise a “concrete response” and “to address the issue with immediate and long term solutions.” While the DOH responded about working on possible solutions, the PNAC requested for conclusive evidence on the alleged stock-out.

 “…ang mayroon kaming evidence ngayon ay ang clamour, mayroon kaming screenshots, at kinonsolidate namin lahat ng clamours sa social media – clamour ng mga clients on shortage. Sinagot samin ni PNAC ay hindi ‘yan evidence kailangan evidence-based tayo,” Felix shared. 

 As N+ was convinced that their recorded narratives were not considered substantial to back their claims, the network sought the assistance of the Community-Led Monitoring system to provide the needed data.

“Ang ginawa ng N+ ay kinuha ang data ng commusta.ph. From there, may mga nakuhang data na sinasabi ng mga clients, complaints or report ng mga clients na may shortage talaga. ‘Yun ang ginamit ng N+ na evidence na kailangan ni PNAC. Mas mabigat ang data na nanggaling sa Community-Led Monitoring System. ‘Yun ang itinataya natin ngayon, na itong data na nakukuha natin from the community, magagamit din ng community for the advocacy.” 

Felix also called for PLHIVs to continuously report similar cases as those are critical to enhancing the Philippine HIV response. “Doon palang sa pagbigay natin ng datos sa gobyerno ay may epekto na, paano pa kung mas marami ang makakagamit ng ating CLM tools. Makikita pa natin ang mga barriers kung bakit mayroon tayong mga lost to follow-up, bakit mayroon tayong may mga namamatay, bakit lumalala ang kalagayan nia. So kung dito, sa CLM data, makikita na natin na ito ang mga balakid. Pwede natin itong magamit sa pagbabago ng mga targets, mga plano.”, she said.

 Felix also underscored that the data is intended for the delivery of quality services that needs to be recognized by the local government units.

“Sa government, lalo na sa local government, sana maappreciate nila na ung data ay para sa ikabubuti ng kanilang pagseserbisyo. Isang nakita ko sa isang treatment hub conference, lumabas doon na mayroon talagang shortage. At lumabas doon na, sinabi nila mismo na kinailangan nila ang community na magreport para matulungan sila doon sa hinaing ng shortage.”

Privacy Policy 

INTRODUCTION

Commusta.ph, through the management of TLF Share Collective Incorporated, respects right to privacy. Please read this policy carefully to understand how we collect, process, and use data.

The data collected at www.commusta.ph will be responsibly used for monitoring, research, and advocacy to improve the Philippines’ HIV and AIDS response.

During data collection, individuals are asked for consent in an appropriate custom regarding their information, as the right to privacy is observed whenever we collect data.

 

INFORMATION COLLECTION

We do not collect sensitive personal information unless you consent to provide it. The information we collect is limited to information that helps advocate better HIV service delivery, responsive HIV policies, appropriate and equitable HIV financing and investments, and eradication or reduction of violence, harassment, stigma & discrimination experienced by the PLHIV community, the key and affected, and vulnerable population.

We collect information using the following data collection tools:

 

A. The Exit Feedback Tool

This survey tool measures the quality of HIV service delivery provided by healthcare providers or facilities. Clients or patients who accessed or received STI, HIV, and AIDS services within the last seven (7) days share their experiences during access to these services.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Exit Feedback Tool (EFT):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Sexual and reproductive health
  2. Name of visited healthcare facility to receive STI, HIV, and AIDS services

 

B. The Service Quality Tool

This is a comprehensive and in-depth survey tool on service quality meant to be answered by clients/patients who received HIV services within the past six (6) months.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Service Quality Tool (SQT):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Sexual and reproductive health
  2. Name of visited healthcare facility to receive STI, HIV, and AIDS services

 

C. The Violence, Harassment, Stigma & Discrimination (VHSD) Tool

This survey tool documents PLHIV and KP’s experiences of violence, harassment, stigma, and discrimination in different settings, such as Healthcare Facilities, Workplaces or Employment, Educational or Learning Institutions, Government Agencies, Religious Facilities, General Communities or Public Spaces, Households, Family, or Intimate Relationships, during access to Justice, During Crises and Humanitarian Emergencies, Online Spaces, and other spaces. This also documents, among other things, the redress-seeking behavior of PLHIV KPs and the availability and accessibility of redress mechanisms.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Violence, Harassment, Stigma & Discrimination (VHSD) Tool:

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address

 

D. The Out-of-Pocket Expense Tool (OPET)

This survey tool collects data on how much clients or patients spend when availing STI, HIV, and AIDS-related services and/or commodities. The data collected from this tool will also be used to study how HIV-related expenditures affect the clients’ or patients’ socioeconomic situation.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Out-of-Pocket Expense Tool (OPET):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Geographical location
    • Home city
    • Home province
  1. Living situation
    • Living with family
    • Living with friends or community members
    • Living in shelter
    • Living alone
  1. Employment status
    • Permanently Employed (Full-time)
    • Permanently Employed (Part-time)
    • Temporarily Employed
    • Contract of Service or Contract Employment
    • Seasonally Employed
    • Freelancer or Independent Contractor
    • Self-employed
    • Unemployed
    • Not Applicable, still a student
  1. Monthly income bracket
    • Below PHP 10,957.00
    • PHP 10,957.00 to PHP 21,914.00
    • PHP 21,915.00 to PHP 43,828.00
    • PHP 43,829.00 to PHP 76,669.00
    • PHP 76,670.00 to PHP 131,484.00
    • PHP 131,485.00 to PHP 219,140.00
    • PHP 219,141.00 and above

 

E. The Financing or Investment Capture Tool (FCT)

This data collection tool documents allotted HIV budget and investment by the government and private organizations.

We may collect personal information using this tool, with consent, such as the key informant’s name and designation in a government office or private organization’s office giving information about their offices’ HIV financing and investments.

 

INFORMATION PROCESSING AND MANAGEMENT

All personal information collected through the commusta.ph is considered raw information in the context of data analysis. Raw information refers to unprocessed or unstructured data that has been collected and has yet to undergo any form of transformation or analysis. For example, the dataset birthdate and sex-assigned-at-birth obtained through the Exit Feedback Tool are considered raw information. Access to collected raw information is exclusive to TLF Share’s data management team only.

TLF Share conducts regular and routine data processing and analysis, which refers to systematic procedures for transforming raw data and packaging them into meaningful information, insights, and actionable outcomes.

 

USE OF INFORMATION

All individual information that undergoes processing and analysis is packaged into aggregated data, reports, and presentations. Aggregated data refers to information that has been summarized or combined from individual-level data points into a more concise and simplified form.

Examples of aggregated data include:

  • Total number of MSM who visited healthcare facilities for their sexual and reproductive health needs
  • Total number of intersex people accessing HIV services
  • Total number of young adults living with HIV
  • Total number of ARV stockouts in a month
  • Average monthly income among PLHIV
  • Average amount of paid HIV services in a year

STORAGE, SECURITY, RETENTION, AND DESTRUCTION

TLF Share adopts and executes reasonable technical approaches and measures to safeguard the collected personal information from unethical and illegal processing, modification, disclosure, and/or destruction.

However, please note that no method of information systems security and technique is completely secure. Transmission of data over the Internet or information stored on servers that are accessible online is not 100% safe and secure. While we try our best to safeguard any collected personal data, we cannot guarantee its absolute security.

Collected personal information shall be retained only for the period necessary to serve the purpose of its collection or as required under any contract, by applicable law, or policy issuance. Thereafter, personal information shall be disposed of securely to prevent further processing, unauthorized access, or disclosure to other parties.

AMENDMENT OR CHANGES TO THIS POLICY

TLF Share reserves the right to amend this Privacy Policy at any time to comply with applicable laws and regulations, and to reflect the objectives of commusta.ph’s operations and environment. Please periodically review this Policy on our website for the latest information.

CONTACT DETAILS

You may contact our Data Privacy Officer through the contact details provided below for queries, clarifications, and/or complaints regarding how we process personal information.

Data Privacy Officer
HIV Community-Led Monitoring System (CLMS) | www.commusta.ph
TLF Share Collective Incorporated
Email: tlfmanila@gmail.com and clmsystem.tlfshare@gmail.com

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