PLHIV hopeful for the launch of COM.MUSTA community-led monitoring system

The PLHIV community led by the Network Plus Philippines Association, Inc. is excited with the upcoming launch of the new CLM platform. Below are some thoughts shared by community leaders from across the Philippines on the launching of CLM:

“Here at Cavite Positive Action Group in Region IV-A  natutuwa kame dahil magkakaroon na tayo ng  CLM dahil dito mas lalong magkakaroon at mapapalakas pa ang maibibigay na mga services ng mga Support Group sa buong Pilipinas lalo na sa HIV Counseling, pagpapababa at pagsugpo sa HIV Stigma & Discrimination kasama ang mga Treatment Hubs and Social Hygiene Clinic sa buong Pilipinas.” (JC Honra, CPAG)

“Excited ug Happy kami dria sa Davao Region apil na ang kinatibuk-an sa Mindanao nga mga SUPPORT GROUPS e.g. TAHAS, nga aduna nay  pamaagi aron maipadangat ang mga nasinati nga dili maayo ug diskriminasyon nga mga serbisyo nga gihatag sa mga pasilidad nga nagahatag ug HIV SERVICES and alike. Madungog ang amua boses maski dili kami mo istorya ang mga mulo sa mga kliyente ug mamahimo siyang ebidensya aron sa pagtan aw ug sumbanan aron sa paghatag ug maayong serbisyo sa mga kliyente. Ang CLM mamahimo siyang USA ka paagi nga maka strategize pa sa mga pasilidad sa paghatag ug QUALITY nga serbisyo. Mamahimo siyang sumbanan sa mga pasilidad, LGUs ug service providers nga adunay non discriminatory nga serbisyo alang sa komunidad. Mamahimo siyang sumbungan sa mga na discriminate. Mamahimo siyang plataporma aron maka impluwensya sa mga hingtundan nga muhimog polisiya aron pagprotekta sa katungod sa mga tao labi na ang Naga access ug STI UG HIV SERVICES. Mamahimo siyang sumbanan nga mapakusgan ang balaod ug labi na ang confidentiality sa USA ka tao.”

“Maka happy sad tungod kaming nasa layo sa sentro sa Pilipinas adunay kami’y plataporma na pwede madungog ang amua boses padulong sa National nga aduna pud kami mulo ug kinahanglan paminawon ug matagaan ug pagtagad ug maibaba ang budget ug serbisyo dria sa amuang dapit.” (Natsu Gray, TAHAS)

“Ikaragsak mi ditoy Ilocos Region nga parte kami iti CLM. Daytoy ket makatulong iti amin nga PLHIV ditoy Ilocos Region tapnu maamwan da nu naala ken nausar da amin a serbisyo nga maitid ti Facilities ken LGU. Sapay kuma daytoy nga CLM platform ket mausar amin iti PLHIV in the long period.” (Kevyn, iPLUS Support Group)

“Tarendi kame aqui na zamboanga por medyo del CLM. Ohala mas intensifica kita pelya konel HIV infection na communidad Y salva kita konel futuru del d atun maga Jovenes. Ohala, este CLM ay ayuda para dale buen servicio para kita el stigma y discriminasion na d atun Pais. Gracias atodos Y Dios te bendiga!” (Vida Vivo Zamboanga)

“We might be overwhelmed by poor, unfair, and unjust services to our community, so this resolute effort by the people behind Community-Led Monitoring has come to exist to initiate progress for the advancement of services we are accessing at our treatment facilities. From Social Action for Lasting Transformation, Inc., in Davao City, we acknowledge your unwavering effort to make our community have access to enhanced services for People Living with HIV. Its launching is one of the significant events for all of us. Thank you for journeying with us.” (Mervyn, SALT)

“The Positive Elders, Philippines (PELP) welcomes the Community-Led Monitoring (CLM). With the launching of CLM today, PELP sees it as a big step towards improving services and handling of patients at treatment hubs. With more than 62 members now, PELP considers CLM as an opportunity for elderly PLHIVs to give candid and constructive feedback on how they were handled in their respective treatment hubs and on the services given them or the lack thereof.” (Gem, PELP)

Privacy Policy 

INTRODUCTION

Commusta.ph, through the management of TLF Share Collective Incorporated, respects right to privacy. Please read this policy carefully to understand how we collect, process, and use data.

The data collected at www.commusta.ph will be responsibly used for monitoring, research, and advocacy to improve the Philippines’ HIV and AIDS response.

During data collection, individuals are asked for consent in an appropriate custom regarding their information, as the right to privacy is observed whenever we collect data.

 

INFORMATION COLLECTION

We do not collect sensitive personal information unless you consent to provide it. The information we collect is limited to information that helps advocate better HIV service delivery, responsive HIV policies, appropriate and equitable HIV financing and investments, and eradication or reduction of violence, harassment, stigma & discrimination experienced by the PLHIV community, the key and affected, and vulnerable population.

We collect information using the following data collection tools:

 

A. The Exit Feedback Tool

This survey tool measures the quality of HIV service delivery provided by healthcare providers or facilities. Clients or patients who accessed or received STI, HIV, and AIDS services within the last seven (7) days share their experiences during access to these services.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Exit Feedback Tool (EFT):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Sexual and reproductive health
  2. Name of visited healthcare facility to receive STI, HIV, and AIDS services

 

B. The Service Quality Tool

This is a comprehensive and in-depth survey tool on service quality meant to be answered by clients/patients who received HIV services within the past six (6) months.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Service Quality Tool (SQT):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Sexual and reproductive health
  2. Name of visited healthcare facility to receive STI, HIV, and AIDS services

 

C. The Violence, Harassment, Stigma & Discrimination (VHSD) Tool

This survey tool documents PLHIV and KP’s experiences of violence, harassment, stigma, and discrimination in different settings, such as Healthcare Facilities, Workplaces or Employment, Educational or Learning Institutions, Government Agencies, Religious Facilities, General Communities or Public Spaces, Households, Family, or Intimate Relationships, during access to Justice, During Crises and Humanitarian Emergencies, Online Spaces, and other spaces. This also documents, among other things, the redress-seeking behavior of PLHIV KPs and the availability and accessibility of redress mechanisms.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Violence, Harassment, Stigma & Discrimination (VHSD) Tool:

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address

 

D. The Out-of-Pocket Expense Tool (OPET)

This survey tool collects data on how much clients or patients spend when availing STI, HIV, and AIDS-related services and/or commodities. The data collected from this tool will also be used to study how HIV-related expenditures affect the clients’ or patients’ socioeconomic situation.

The following personal information, with consent, is collected from individuals when they consented to provide them using the Out-of-Pocket Expense Tool (OPET):

  1. Birthdate and Age
  2. Sex-assigned-at-birth
  3. Gender Identity
  4. HIV Sectoral or Key Affected and Vulnerable Population Identities
    • Persons living with HIV (PLHIV)
    • Men who have sex with men (MSM)
    • Persons who inject drugs (PWID)
    • Persons who use drugs (PWUD)
    • Transgender women (TGW)
    • Persons deprived of liberty (PDL)
    • Person in prostitution
    • Sex worker
    • Persons who pay for sex
    • Pregnant persons
    • Partners of PLHIV
    • Migrant worker
  1. Disability
  2. Contact information
    • Mobile number
    • Email address
  1. Geographical location
    • Home city
    • Home province
  1. Living situation
    • Living with family
    • Living with friends or community members
    • Living in shelter
    • Living alone
  1. Employment status
    • Permanently Employed (Full-time)
    • Permanently Employed (Part-time)
    • Temporarily Employed
    • Contract of Service or Contract Employment
    • Seasonally Employed
    • Freelancer or Independent Contractor
    • Self-employed
    • Unemployed
    • Not Applicable, still a student
  1. Monthly income bracket
    • Below PHP 10,957.00
    • PHP 10,957.00 to PHP 21,914.00
    • PHP 21,915.00 to PHP 43,828.00
    • PHP 43,829.00 to PHP 76,669.00
    • PHP 76,670.00 to PHP 131,484.00
    • PHP 131,485.00 to PHP 219,140.00
    • PHP 219,141.00 and above

 

E. The Financing or Investment Capture Tool (FCT)

This data collection tool documents allotted HIV budget and investment by the government and private organizations.

We may collect personal information using this tool, with consent, such as the key informant’s name and designation in a government office or private organization’s office giving information about their offices’ HIV financing and investments.

 

INFORMATION PROCESSING AND MANAGEMENT

All personal information collected through the commusta.ph is considered raw information in the context of data analysis. Raw information refers to unprocessed or unstructured data that has been collected and has yet to undergo any form of transformation or analysis. For example, the dataset birthdate and sex-assigned-at-birth obtained through the Exit Feedback Tool are considered raw information. Access to collected raw information is exclusive to TLF Share’s data management team only.

TLF Share conducts regular and routine data processing and analysis, which refers to systematic procedures for transforming raw data and packaging them into meaningful information, insights, and actionable outcomes.

 

USE OF INFORMATION

All individual information that undergoes processing and analysis is packaged into aggregated data, reports, and presentations. Aggregated data refers to information that has been summarized or combined from individual-level data points into a more concise and simplified form.

Examples of aggregated data include:

  • Total number of MSM who visited healthcare facilities for their sexual and reproductive health needs
  • Total number of intersex people accessing HIV services
  • Total number of young adults living with HIV
  • Total number of ARV stockouts in a month
  • Average monthly income among PLHIV
  • Average amount of paid HIV services in a year

STORAGE, SECURITY, RETENTION, AND DESTRUCTION

TLF Share adopts and executes reasonable technical approaches and measures to safeguard the collected personal information from unethical and illegal processing, modification, disclosure, and/or destruction.

However, please note that no method of information systems security and technique is completely secure. Transmission of data over the Internet or information stored on servers that are accessible online is not 100% safe and secure. While we try our best to safeguard any collected personal data, we cannot guarantee its absolute security.

Collected personal information shall be retained only for the period necessary to serve the purpose of its collection or as required under any contract, by applicable law, or policy issuance. Thereafter, personal information shall be disposed of securely to prevent further processing, unauthorized access, or disclosure to other parties.

AMENDMENT OR CHANGES TO THIS POLICY

TLF Share reserves the right to amend this Privacy Policy at any time to comply with applicable laws and regulations, and to reflect the objectives of commusta.ph’s operations and environment. Please periodically review this Policy on our website for the latest information.

CONTACT DETAILS

You may contact our Data Privacy Officer through the contact details provided below for queries, clarifications, and/or complaints regarding how we process personal information.

Data Privacy Officer
HIV Community-Led Monitoring System (CLMS) | www.commusta.ph
TLF Share Collective Incorporated
Email: tlfmanila@gmail.com and clmsystem.tlfshare@gmail.com

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